For people living with complex, chronic or age-related conditions who depend on Integrated Long-Term Care (I-LTC), these rights represent a potentially transformative shift. Yet data fragmentation across health, social and informal care settings remain the norm — and legislation alone does not guarantee integration in practice.

 This webinar asks three fundamental questions: What do patients and informal carers need from digital data sharing in I-LTC? How can citizen-mediated data sharing be guaranteed? Are current policies and tools answering that guarantee?

Drawing on the experiences of the LAUREL and xShare projects — two EU-funded initiatives advancing citizen-controlled health data and care integration — this webinar will explore how the EHDS and citizen-controlled data tools can:

1. Place patient and carer needs at the centre of I-LTC digital transformation
2. Contribute to care integration in practice
3. Leverage concrete regional and EU-level experiences to inform policy on care integration possibilities and benefits
4. Identify what is still missing for citizens, carers and care systems