Health Data Spaces and Ecosystems #Imagining2029
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Data is a vital ingredient to the provision of good health and care systems and services. Data and digital technologies enable us to reach and understand more people, better meet their healthcare needs, and improve the healthcare ecosystem. EHTEL is keen to explore with its members and community the directions taken in Europe on health data spaces and explore how best the ecosystems around health data can function. The institutions involved will cover various domains of the health and care sectors. |
This stream focuses on data and data ecosystems. It consolidates the work done in previous years by the ELO network and the Digital Integrated Care Taskforce (DICT) on European Health Data Spaces and health data ecosystems.
Objectives
- Inform and educate EHTEL members on discussions that are taking place on European policies and their potential future directions, related to e.g., the Data Governance Act and the European Health Data Space.
- Provide feedback to the European Commission with messages from our members.
Work Programme
Three workshop sessions are scheduled for 2021. They will be supported by projects and the fruit of collaborations among EHTEL working groups and task forces. The proposed calendar for the workshops is April, June and October 2021.
- Integrating mobile health data in health service value chains (supported by mHealth Hub):
This workshop draws on the development of health data ecosystems with patient-generated data into health data ecosystems through mobile applications. The aim is to improve clinical work and generate value. Health data is actively used in different health and care institutions: European hospitals, general practices, and the care sector. Onboarding, validation, and reimbursement of mHealth apps are uneven across Europe, although some countries are leading the way forward (e.g., Belgium, Germany).
In the last years, many Member States have developed a “meaningful use” strategy which aims at incentivising healthcare professionals to use certified solutions in a consistent way. Now that mHealth applications and digital therapeutics are beginning to be considered as important elements of digital transformation, the whole business model needs to evolve and take into consideration shared responsibilities in the production of data and the use of enabled services.
- Building the data-driven hospital and facing the challenges: from EHRs to data ecosystems
Data-driven innovations underpin smart hospitals by integrating existing hospital information systems with new sources of data that are generated by patients, medical devices, and distributed sensors. Hospitals are in the lead among data ecosystems: they can gather ‘treasure troves’ of data that can enable the optimisation of operations and new models of care.
Gathering together the experiences of leading hospitals in developing command centres, digital twins or real-time simulation systems, this workshop will explore the current challenges of integrating data streams and creating value-based services, including the use of artificial intelligence (AI), in different hospital and integrated care configurations.
- Outlining reference architectures in the health sector (supported by OPEN DEI)
The OPEN DEI coordination and support action convenes nine large-scale pilot projects in its healthcare cluster, including three smart hospital projects covering a wide spectrum of use cases and conditions.
The goal of this workshop is to share the knowledge developed in the cluster on how to develop a generic, scalable, and GDPR-compliant data reference architecture together with views on how to develop health data spaces for innovation, health policies, or research.